- Pseudomonas. Cystic Fibrosis Foundation website. Accessed June 1, 2021. https://www.cff.org/Life-With-CF/Daily-Life/Germs-and-Staying-Healthy/What-Are-Germs/Pseudomonas/
- Tramper-Stranders GA, van der Ent CK, Wolfs TFW. Detection of Pseudomonas aeruginosa in patients with cystic fibrosis. J Cyst Fibros. 2005;4 Suppl 2:37-43.
- Cystic fibrosis. US National Library of Medicine website. Updated August 18, 2020. Accessed June 1, 2021. https://medlineplus.gov/download/genetics/condition/cystic-fibrosis.pdf
- Moore JE, Mastoridis P. Clinical implications of Pseudomonas aeruginosa location in the lungs of patients with cystic fibrosis. J Clin Pharm Ther. 2017;42(3):259-267. doi:10.1111/jcpt.12521
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- Cystic Fibrosis Foundation. 2019 Patient Registry Annual Data Report. Bethesda, MD: Cystic Fibrosis Foundation; 2019. Accessed June 1, 2021. https://www.cff.org/Research/Researcher-Resources/Patient-Registry/2019-Patient-Registry-Annual-Data-Report.pdf
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- Svedberg M, Gustafsson P, Tiddens H, Imberg H, Pivodic A, Lindblad A. Risk factors for progression of structural lung disease in school-age children with cystic fibrosis. J Cyst Fibros. 2020;19(6):910-916. doi:10.1016/j.jcf.2019.10.014
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- Bregnballe V, Schiøtz PO, Boisen KA, Pressler T, Thastum M. Barriers to adherence in adolescents and young adults with cystic fibrosis: a questionnaire study in young patients and their parents. Patient Prefer Adherence. 2011;5:507-515. doi:10.2147/PPA.S25308
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- Zobell JT, Moss J, Heuser S, Roe L, Young DC. Understanding the expanding role of pharmacy services in outpatient cystic fibrosis care. Pediatr Pulmonol. 2021;56(6):1378-1385. doi:10.1002/ppul.25283
Now that you know Pseudomonas aeruginosa can hide within the lungs, progress, and threaten the way you’re feeling, it may be time to talk to your doctor or someone on your cystic fibrosis (CF) care team.
Download a doctor discussion guide now or build your personalized guide below.
My top conversation starters:
What questions below are most important to you? Click the plus sign on as many of the questions as you want to build your doctor discussion guide.
What medications are critical for me to keep feeling my best?
I’m concerned that Pseudomonas aeruginosa could be hiding in my lungs.
Managing multiple treatments for CF along with a busy lifestyle is hard. How do others you know do it?
Are the CF treatments I’m taking now protecting me from Pseudomonas aeruginosa?
I’m having more respiratory symptoms; what should I do?
I haven’t been taking my inhaled antibiotics. Can you help me get back on track?
Does chronic Pseudomonas aeruginosa ever go away?
I’m feeling better with my other CF treatments, so why do I need to take my treatment for Pseudomonas aeruginosa?
What could happen if I don’t take my treatment for Pseudomonas aeruginosa?
If I’ve had an exacerbation, do I need to restart my inhaled antibiotics?
